With Parkinson's, a night can mean lying stiff in the dark, working out how to get from your back onto your side, and then doing the same sum again when you need to get out of bed. If you're the one lying next to them, you're often awake for it too. I'm a light sleeper and wake whenever the person beside me so much as turns over, so I know that tired, broken kind of night. This one is for both of you.
So, the new bed: usually you don't need one, or at least not first. Parkinson's UK suggests trying the small changes before the big one: a satin or sliding sheet and a bed rail come ahead of a new mattress, and they cost a fraction of one. I'd add getting the bed height right. In England you may not have to pay for any of it, because the NHS says equipment and small adaptations are free if a needs assessment finds you need them. And the bed-height check is one you can do tonight with someone to hold the tape measure: sit on the edge, feet flat on the floor, and see whether your hips are level with your knees or a touch above. That's the measure Laura Phillips of Parkinson's UK gave us, and it's the one I've always used.
Which part of the night is hardest for you at the moment?
- Turning over
- Getting in and out of bed
- Waking when my medication wears off
- Restless legs or spasms
- My partner's sleep
Parkinson's makes moving in bed hard, and that's the part you can change
Not everything that makes these nights hard can be fixed at home. Turning over and getting out of bed are the parts you can do something about at home, so that's where to put your energy first. We asked Laura Phillips, Senior Parkinson's Adviser at Parkinson's UK, about sleep and beds in October 2026, and she told us what the night is actually like:
Look at how much of that is about movement. Before you buy or change anything, spend a few nights noticing which bit is hardest for you: rolling from one side to the other, sitting up in the morning, or waking at the same time each night. If you share the bed, ask your partner what they see, because they're awake for parts of the night you won't remember.
Laura also told us that sleep problems can be a symptom of Parkinson's itself or a side-effect of medication, and that sleep can be broken when medication wears off during the night. The Parkinson's UK page on Parkinson's symptoms and sleep says the same: "If your Parkinson's drugs wear off during the night, stiffness, tremor or pain may interrupt your sleep." It adds that uncomfortable muscle spasms can happen as levodopa wears off.1 If that pattern sounds like yours, speak to your specialist or Parkinson's nurse. A new mattress won't change when your medication wears off.
Then there are restless legs. The charity's page on restless legs syndrome says symptoms "generally get worse in the evening or at night", which is exactly when you're trying to settle.3 If they're keeping you up, that's one for the GP.
Try a sliding sheet and a bed rail before a new mattress
The first things I'd try are cheap, and they go on the bed you've already got. A sliding sheet can help you turn and a rail helps you get up, and Laura was clear about that order; she said it before anything else about mattresses.
A satin or sliding sheet is slippery, so there's less grip between you and the bed when you roll. Parkinson's UK adds a warning I'd underline twice: use satin sheets or satin pyjamas, never both at once, because together they "could make you slide out of bed too quickly". Putting a satin sheet on a double is the same faff as any fitted sheet, with the bonus that it slithers off one corner while you're tucking in the other, so do it with two people if you can.
The rail is the other half. The charity's page on managing sleep problems lists "bedside grab rails, to help you get yourself in and out of bed independently".2 A rail gives you something solid to hold while you sit up and push off. I'd fit it on the side you get out of, even if the other side has more room. Laura also says your needs will change over time, so look again next year at what works this year.
A satin or sliding sheet for turning over and a bedside grab rail for getting up: the two changes to try before a new mattress.In England you may not have to buy any of this, and I'd find out before you get your card out. Under getting out of bed, the NHS page on household gadgets and equipment lists a grab rail, leg lifter straps and things to raise your bed.5 It says a needs assessment is free, and that equipment and small adaptations "will be provided for free if you're assessed as needing them". So ask social services at your council for that assessment. In England and Wales, the GOV.UK needs assessment finder takes your postcode and points you to the right council.6 In Scotland, ring your council and ask what they offer. In Northern Ireland, social care is run by the Health and Social Care Trusts, so ring your local Trust instead.7
If you'd rather talk it through with a person first, ring the charity's helpline on 0808 800 0303.4 It's free and confidential, and its advisers include specialist Parkinson's nurses, so ask them about equipment for getting in and out of bed. The lines are open Monday to Friday 9am to 6pm and Saturday 10am to 1pm.
- A sliding or satin sheet on the bed, or satin pyjamas instead, never both
- A grab rail fitted on the side you get out of
- Bed height measured against Laura's guide
- A leg lifter strap or bed raisers, if an assessment says you need them
- Asked the council (or in Northern Ireland, your Trust) for a needs assessment
- Rung the Parkinson's UK helpline about equipment
Get the bed height right for getting in and out
If there's one thing I'd check before anyone mentions mattresses, it's how high your bed is, because I think the right height turns standing up into a push instead of a climb. Laura recommends independent advice on the height, since the right one depends on how you move:
I like that last sentence because it's about your body and nothing else. With your hips level with your knees or a touch above, I find your legs are in a good place to push up from. With your hips lower than your knees, every morning starts with climbing out of a dip. Go too high and your feet stop resting flat on the floor, which is the other half of Laura's measure. A bed's listing gives you its height in centimetres and has no idea how long your shins are.
Laura's measure: sitting on the edge, feet flat on the floor, hips level with your knees or slightly higher.You need two numbers, a second pair of hands and a tape measure, which will be in whichever drawer you check last. Sit on a kitchen chair with your shoes off and your feet flat, and have someone measure from the floor to the crease behind your knee. Then sit on the edge of the bed where you usually get in and out, and have them measure from the floor to the top of the mattress right beside you. Do the second one with you sitting there, because the edge squashes down under you, and a bed's height on a listing is taken with nobody on it. Write both down in centimetres.
Check your bed against Laura's measure
Take your knee measurement away from your bed measurement. If the answer is below zero, your hips sit lower than your knees. If it's zero or a little above and your feet still rest flat, that meets Laura's guide.
Whatever your number says, keep Laura's first point in mind: the right height depends on how you move, and that's what an occupational therapist or physio is for. The NHS page on Parkinson's treatment says an occupational therapist can "help you work out practical solutions and ensure your home is safe and properly set up for you", and that a physiotherapist can work with you to relieve muscle stiffness and joint pain through movement and exercise. Take your two measurements to the appointment so they're starting from real numbers.8 These are the routes to getting the height looked at properly:
- Ask your specialist or Parkinson's nurse about seeing an occupational therapist or physio, and take your two measurements with you.
- Ask social services at your council for an assessment for equipment or home adaptations. The NHS page on home adaptations says "An occupational therapist will visit you at your home", and that they'll walk around with you to see what you struggle with, so show them the bed.9
- Ring the Parkinson's UK helpline on 0808 800 0303 if you're not sure which route suits you.
And when you do get up, take it in stages. The charity says getting up slowly and sitting up in bed before you stand may help you avoid dizziness.
If you do change the bed, try it before you buy
Sometimes the old bed really is past it, and then a new one is worth having, as long as you've tried it doing the things you find hard. Laura's advice lands in the same place: she told us mattress choice is a personal preference, that what suits one person may not suit another, and that if possible you should try different types of mattresses and beds before buying. A different bed can help once the small changes are in and the height is right, but only one that suits you.
Lying still on your back for two minutes tells you very little. You'll feel daft rolling about on a showroom bed in your coat, and it's still worth doing. Roll from one side to the other a few times. Sit on the edge and stand up, then lie back down the way you do at home. If you share the bed, bring your partner and have them do the same, because it has to work for both of you. Parkinson's UK puts the reason plainly: "Not every type will suit your specific needs, or be right for you."
What to feel for is my view, not Laura's. A mattress that springs back under you is easier to turn over on than one you sink deep into, because there's less of a trough to climb out of every time you roll. The edge matters as much as the middle: it's where you sit to put your socks on and where you push off to stand, and an edge that sinks when you sit is a bed that's lower than it looked. When getting up is the hard part, I'd put bed height and edge support ahead of firmness every time.
An adjustable base is the one place I think the extra spend earns its keep, for anyone who struggles to sit up in bed: the head end lifts you most of the way before you've had to do anything. If that's you, look at mattresses that work on an adjustable base, try the base itself before you buy it, and ask your occupational therapist whether it suits how you move. If it's your partner's sleep that suffers when you turn and shift in the night, our guide to mattresses for restless sleepers covers beds that are easier to turn on and disturb a partner less.
Tell your GP or Parkinson's nurse about new or sudden changes in sleep
You know your own nights better than anyone, so you're the one who'll notice when something shifts. That's when to tell your GP, whatever your normal looks like, and there's no set number of hours to measure yourself against.
The words to hold on to are "new or sudden". What a GP or Parkinson's nurse needs from you is what changed and when it started. Laura also told us that disrupted sleep can affect physical and mental wellbeing, so the sooner it's looked at the better, and that a partner can help explain the problem to the GP. She made one more point that's worth hearing before you spend anything: not every symptom is down to Parkinson's, and not every sleep problem will be helped by a different mattress or bed. GPs may be able to offer treatment or refer you to a specialist, which a new mattress can't.
A week of notes makes that appointment far easier, and it saves you trying to remember Tuesday at half past three in a short appointment. Fill them in each morning, and if your partner was awake for any of it, let them fill in the gaps. The diary below stays in your browser, so print it before you go.
Your week of nights, to take to the appointment
Each morning, write down when you went to bed and got up, each time you woke and why, how hard turning over was, and anything new.
If restless legs are part of your nights, the NHS has its own advice on when to see a GP about them.10 And if the pattern in your diary lines up with doses wearing off, take it to your specialist or Parkinson's nurse instead.
NHS advice on restless legs. See a GP if you have symptoms of restless legs syndrome and:
- it's stopping you sleep
- it's affecting your mental health
- you've tried things you can do yourself but they have not helped
Source: NHS, restless legs syndrome.
Questions people ask about beds and Parkinson's
There isn't one best mattress for Parkinson's. Laura Phillips of Parkinson's UK says mattress choice is a personal preference and what suits one person may not suit another. Before you shop, try a sliding sheet or a bed rail and check your bed height. When you do try mattresses, test turning over and getting up from the edge; I'd lean towards one that springs back under you, with an edge firm enough to sit on.
I think so, if sitting up in bed is the hard part. An adjustable base is worth it for anyone who struggles to sit up, because the head end does some of the lifting for you. Ask an occupational therapist whether one suits how you move, and try it in person first, since Parkinson's UK says not every type of bed will suit your needs.
They can, for turning over. Laura names satin or sliding sheets among the first things to try, and Parkinson's UK says satin sheets or pyjamas may help. Use one or the other, never both, because together they could make you slide out of bed too quickly.
See your GP when your sleep is disrupted in a new or sudden way, which is Laura's test. See them about restless legs too if they're stopping you sleeping. Take a week of notes and, if you can, your partner, who can help explain what happens at night. For anything to do with medication wearing off, speak to your specialist or Parkinson's nurse.